Get the Facts: Specific Conditions or Diseases
A curated, annotated, and extensive list of links to vital caregiving information and resources.
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Alzheimer’s Disease and Related Dementias
- Alzheimer’s Association: Their 24 hour Helpline: 800‑272‑3900
- Alzheimer’s Foundation of America: Call their Toll‑free helpline between 9 AM-9 PM EST, at 866-232‑8484
- Centers for Disease Control and Prevention
- National Institute on Aging at the National Institutes of Health-Alzheimer’s Disease Education and Referral Center
- Positive Approach to Care: site of an occupational therapist, who is one of the world’s leading educators on dementia and dementia care
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Aplastic Anemia and MDS
- Aplastic Anemia & MDS International Foundation has compiled a broad range of helpful resources to assist caregivers as they support the bone marrow failure patients in their lives.
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Arthritis
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Cancer
- American Cancer Society or call 1‑800‑227‑2345
- CancerCare: provides free, professional support for anyone affected by cancer. Call 1-800‑813-HOPE (4663)
- Cancer Support Community: supports cancer caregivers, with chapters in fifty communities around the country
- Cancer.Net
- Centers for Disease Control and Prevention
- Mesothelioma Hope or call 1‑855‑887‑2766
- National Cancer Institute (NCI) at the National Institutes of Health
- National Coalition for Cancer Survivorship
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Diabetes
- American Diabetes Association
- Centers for Disease Control and Prevention
- International Diabetes Federation
- Juvenile Diabetes Research Foundation
- National Diabetes Education Program at the National Institutes of Health
- National Institute of Diabetes and Digestive and Kidney Diseases at the National Institutes of Health
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Heart Disease/Stroke
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Kidney
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Neuro-psychiatric Disorders
- ALS/Lou Gehrig’s Disease
- Mental Illness
- Multiple Sclerosis
- Spinal Cord Injury/Paralysis
- Traumatic Brain Injury
- Post-Traumatic Stress Disorder
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Parkinson’s Disease
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Rare Diseases
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Special Needs Children
- Autism
- Down Syndrome
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Vision Problems
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Other Conditions
Searches for reliable information on other conditions, search these federally-funded sites: